Interviews with experts in rare diseases for the development of clinical decision support system software - a qualitative study.

ABSTRACT:

Background

Patients with rare diseases (RDs) are often diagnosed too late or not at all. Clinical decision support systems (CDSSs) could support the diagnosis in RDs. The MIRACUM (Medical Informatics in Research and Medicine) consortium, which is one of four funded consortia in the German Medical Informatics Initiative, will develop a CDSS for RDs based on distributed clinical data from ten university hospitals. This qualitative study aims to investigate (1) the relevant organizational conditions for the operation of a CDSS for RDs when diagnose patients (e.g. the diagnosis workflow), (2) which data is necessary for decision support, and (3) the appropriate user group for such a CDSS.

Methods

Interviews were carried out with RDs experts. Participants were recruited from staf

SUBMITTER: Schaaf J 

PROVIDER: S-EPMC7493382 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature