A Survey-Based Needs Assessment of Barriers to Optimal Sickle Cell Disease Care in the Emergency Department.

ABSTRACT:

Study objective

Guided by an implementation science framework, this needs assessment identifies institutional-, provider-, and patient-level barriers to care of sickle cell disease (SCD) in the emergency department (ED) to inform future interventions conducted by the multicenter Sickle Cell Disease Implementation Consortium.

Methods

The consortium developed and implemented a validated needs assessment survey administered to a cross-sectional convenience sample of patients with SCD and ED providers caring for them. In total, 516 adolescents and adults with SCD and 243 ED providers from 7 and 5 regions of the United States, respectively, responded to the ED care delivery for SCD survey.

Results

Survey results demonstrated that 84.5% of respondents with SCD have an outpa

SUBMITTER: Linton EA 

PROVIDER: S-EPMC7511000 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature