Dataset Information

Patients' and caregivers' perspectives on access to kidney replacement therapy in rural communities: systematic review of qualitative studies.

ABSTRACT:

Objective

Patients with chronic kidney disease (CKD) requiring kidney replacement therapy (KRT) in rural communities encounter many barriers in accessing equitable care and have worse outcomes compared with patients in urban areas. This study aims to describe the perspectives of patients and caregivers on access to KRT in rural communities to inform strategies to maximise access to quality care, and thereby reduce disadvantage, inequity and improve health outcomes.

Setting

18 studies (n=593 participants) conducted across eight countries (Australia, Canada, the UK, New Zealand, Ghana, the USA, Tanzania and India).

Results

We identified five themes: uncertainty in navigating healthcare services (with subthemes of struggling to absorb information, without familiarity and exposure to options, grieving former roles and yearning for cultural safety); fearing separation from family and home (anguish of homesickness, unable to fulfil family roles and preserving sense of belonging in community); intense burden of travel and cost (poverty of time, exposure to risks and hazards, and taking a financial toll); making life-changing sacrifices; guilt and worry in receiving care (shame in taking resources from others, harbouring concerns for living donor, and coping and managing in isolation).

Conclusion

Patients with CKD in rural areas face profound and inequitable challenges of displacement, financial burden and separation from family in accessing KRT, which can have severe consequences on their well-being and outcomes. Strategies are needed to improve access and reduce the burden of obtaining appropriate KRT in rural communities.

SUBMITTER: Scholes-Robertson NJ

PROVIDER: S-EPMC7513603 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Patients' and caregivers' perspectives on access to kidney replacement therapy in rural communities: systematic review of qualitative studies.

Scholes-Robertson Nicole Jane NJ Howell Martin M Gutman Talia T Baumgart Amanda A SInka Victoria V Tunnicliffe David J DJ May Stephen S Chalmers Rachel R Craig Jonathan J Tong Allison A

BMJ open 20200923 9

<h4>Objective</h4>Patients with chronic kidney disease (CKD) requiring kidney replacement therapy (KRT) in rural communities encounter many barriers in accessing equitable care and have worse outcomes compared with patients in urban areas. This study aims to describe the perspectives of patients and caregivers on access to KRT in rural communities to inform strategies to maximise access to quality care, and thereby reduce disadvantage, inequity and improve health outcomes.<h4>Setting</h4>18 stud ...[more]

PMID: 32967878

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Dataset Information

Patients' and caregivers' perspectives on access to kidney replacement therapy in rural communities: systematic review of qualitative studies.

Objective

Setting

Results

Conclusion

Publications

Patients' and caregivers' perspectives on access to kidney replacement therapy in rural communities: systematic review of qualitative studies.

Similar Datasets

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