Understanding families' experiences following a diagnosis of non-syndromic craniosynostosis: a qualitative study.

ABSTRACT:

Objectives

Craniosynostosis is typically diagnosed and surgically corrected within the first year of life. The diagnosis and surgical correction of the condition can be a very stressful experience for families. Despite this, there is little research exploring the impact that craniosynostosis has on families, especially in the period immediately following diagnosis and correction. In this study, the authors aimed to qualitatively examine the psychosocial experience of families with a child diagnosed with craniosynostosis.

Design

Qualitative study.

Setting

Tertiary care paediatric health centre.

Participants

Mothers of children newly diagnosed with single-suture, non-syndromic craniosynostosis.

Intervention

Semistructured interviews regarding parental expe

SUBMITTER: Kuta V 

PROVIDER: S-EPMC7517552 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature