Development of the SPARK family member web pages to improve symptom management for pediatric patients receiving cancer treatments.

ABSTRACT:

Background

Supportive care Prioritization, Assessment and Recommendations for Kids (SPARK) is a web-based application that facilitates symptom screening and access to supportive care clinical practice guidelines (CPGs) for children and adolescents receiving cancer treatments. Objective was to develop SPARK family member web pages for pediatric patient family members accessing: (1) proxy symptom screening and symptom reports, and (2) care recommendations for symptom management based on CPGs.

Methods

SPARK family member web pages were developed and included access to symptom screening and care recommendations sections. Care recommendations for fatigue and mucositis were created. These were iteratively refined based upon cognitive interviews with English-speaking family members

SUBMITTER: Watling CZ 

PROVIDER: S-EPMC7519510 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature