Test-retest reliability of the Performance of Upper Limb (PUL) module for muscular dystrophy patients.

ABSTRACT: The Performance of the Upper Limb (PUL) module is an externally-assessed clinical scale, initially designed for the Duchenne muscular dystrophy population. It provides an upper extremity functional score suitable for both weaker ambulatory and non-ambulatory phases up to the severely impaired patients. It is capable of characterizing overall progression and severity of disease and of tracking the stereotypical proximal-to-distal progressive loss of upper limb function in muscular dystrophy. Since the PUL module has been validated only with Duchenne patients, its use also for Becker and Limb-Girdle muscular dystrophy patients has been here evaluated, to verify its reliability and extend its use. In particular, two different assessors performed this scale on 32 dystrophic subjects in two con

SUBMITTER: Gandolla M 

PROVIDER: S-EPMC7521751 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature