Determining the level of data sharing, and number of publications, from research databases that have been given a favourable opinion by UK research ethics committees.

ABSTRACT:

Objective

To determine data sharing and number of publications coming from research databases that have been given a favourable opinion by UK National Health Service (NHS) Research Ethics Committees (RECs).

Design

Cohort study.

Inclusion criteria & setting

All research databases listed on the UK Health Research Authority's Assessment Review Portal (HARP) that had received a favourable ethics opinion as of January 2018.

Main outcome measures

Publications and data access requests are either listed on HARP or notified through subsequent email correspondence.

Results

Out of 354 eligible databases, 34% had granted access requests and 40% had produced at least one peer-reviewed paper or conference abstract/talk. We could not establish contact with 9% of databa

SUBMITTER: Trace S 

PROVIDER: S-EPMC7528358 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature