Australasian interstitial lung disease registry (AILDR): objectives, design and rationale of a bi-national prospective database.

ABSTRACT:

Background

Interstitial Lung Disease (ILD) is a group of respiratory conditions affecting the lung interstitium often associated with progressive respiratory failure. There is increasing recognition of the need for improved epidemiological data to help determine best practice and improve standardisation of care. The Australasian ILD Registry (AILDR) is a bi-national registry of patients with all ILD subtypes designed to establish a clinically meaningful database reflecting real world practice in Australasia with an objective to improve diagnostic and treatment pathways through research and collaboration.

Methods

AILDR is a prospective observational registry recruiting patients attending ILD clinics at centres around Australia and New Zealand. Core and non-core data are store

SUBMITTER: Moore I 

PROVIDER: S-EPMC7532571 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature