Information sharing challenges in end-of-life care: a qualitative study of patient, family and professional perspectives on the potential of an Electronic Palliative Care Co-ordination System.

ABSTRACT:

Objectives

To explore current challenges in interdisciplinary management of end-of-life care in the community and the potential of an Electronic Palliative Care Co-ordination System (EPaCCS) to facilitate the delivery of care that meets patient preferences.

Design

Qualitative study using interviews and focus groups.

Setting

Health and Social Care Services in the North of England.

Participants

71 participants, 62 health and social care professionals, 9 patients and family members.

Results

Four key themes were identified: information sharing challenges; information sharing systems; perceived benefits of an EPaCCS and barriers to use and requirements for an EPaCCS. Challenges in sharing information were a source of frustration for health and social care pro

SUBMITTER: Standing H 

PROVIDER: S-EPMC7537426 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature