Researchers, patients, and other stakeholders' perspectives on challenges to and strategies for engagement.

ABSTRACT:

Background

There is growing interest in patient and stakeholder engagement in research, yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes Research Institute (PCORI) has funded patient-centered comparative effectiveness research with a requirement for engaging patients and other stakeholders as research partners in study planning, conduct, and dissemination. This requirement, unique among large healthcare research funders in the US, provides an opportunity to learn about challenges encountered and specific strategies used by PCORI-funded study teams. The primary objective of this study is to describe -- from the perspective of PCORI investigators and research partners-the most common engagement challenges encountered in the first two years of th

SUBMITTER: Heckert A 

PROVIDER: S-EPMC7539495 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature