Cohort profile: the eLIXIR Partnership-a maternity-child data linkage for life course research in South London, UK.

ABSTRACT:

Purpose

Linked maternity, neonatal and maternal mental health records were created to support research into the early life origins of physical and mental health, in mothers and children. The Early Life Cross Linkage in Research (eLIXIR) Partnership was developed in 2018, generating a repository of real-time, pseudonymised, structured data derived from the electronic health record systems of two acute and one Mental Health Care National Health Service (NHS) Provider in South London. We present early descriptive data for the linkage database and the robust data security and governance structures, and describe the intended expansion of the database from its original development. Additionally, we report details of the accompanying eLIXIR Research Tissue Bank of maternal and neonatal bl

SUBMITTER: Carson LE 

PROVIDER: S-EPMC7539583 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature