Research priorities of caregivers and individuals with dementia with Lewy bodies: An interview study.

ABSTRACT:

Background

Funding bodies are placing increased emphasis on patient and public involvement in research, but the research priorities of individuals and caregivers living with dementia with Lewy bodies (DLB) are unknown.

Method

Investigators conducted telephone interviews with individuals living with DLB and caregivers. Participants were recruited from a Lewy Body Dementia Association Research Center of Excellence. Interviews employed a semi-structured questionnaire querying research needs in different categories and then asking participants to select their top priorities. Investigators used a qualitative descriptive approach to analyze transcripts and identify themes.

Results

Twenty individuals with DLB and 25 caregivers participated. Seventeen from each group particip

SUBMITTER: Armstrong MJ 

PROVIDER: S-EPMC7540843 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature