Caring for people with dementia in rural Uganda: qualitative study of caregiving burden experienced by informal and formal caregivers.

ABSTRACT:

Background

The rising incidence of Alzheimer's disease among older-age adults worldwide has been accompanied by an increase in caregiving burden. Limited work has examined the lived experiences of both formal and informal caregivers of people living with dementia in low-income countries.

Methods

We conducted one-on-one, in-depth qualitative interviews with a purposive sample of 10 informal caregivers and 5 formal caregivers of people living with dementia in Mbarara, Uganda. They were interviewed about their experiences caring for people with dementia until thematic saturation was reached. All interviews were audio recorded, transcribed into English, and thematically analysed.

Results

Two primary themes emerged from the data: patient factors influencing caregiving burd

SUBMITTER: Ainamani HE 

PROVIDER: S-EPMC7544160 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature