Exploring how people with dementia can be best supported to manage long-term conditions: a qualitative study of stakeholder perspectives.

ABSTRACT:

Objectives

To explore how the self-management of comorbid long-term conditions is experienced and negotiated by people with dementia and their carers.

Design

Secondary thematic analysis of 82 semi-structured interviews.

Setting

Community settings across the United Kingdom.

Participants

11 people with dementia, 22 family carers, 19 health professionals and 30 homecare staff.

Results

We identified three overarching themes: (1) The process of substituting self-management: stakeholders balanced the wishes of people with dementia to retain autonomy with the risks of lower adherence to medical treatments. The task of helping a person with dementia to take medication was perceived as intermediate between a personal care and a medical activity; rules abou

SUBMITTER: Rees JL 

PROVIDER: S-EPMC7545621 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature