Integration of palliative care in services for children with life-limiting neurodevelopmental disabilities and their families: a Delphi study.

ABSTRACT:

Background

The aim of this study was to explore expert professionals' opinions on service provision to children under six with life-limiting neurodevelopmental disabilities (LLNDD), including the goals of care and the integration and coordination of palliative care in general and specialist services.

Methods

A Delphi design was used with three questionnaire rounds, one open-ended and two closed response rounds. Primary data collected over a six-month period from expert professionals with five years' (or more) experience in pediatric, intellectual disability and/or palliative care settings. Ratings of agreement and prioritization were provided with agreement expressed as a median (threshold = 80%) and consensus reported as interquartile ranges. Stability was measured using no

SUBMITTER: Guerin S 

PROVIDER: S-EPMC7545942 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature