Involving Patients in Health Economics Research: "The PACTS Principles".

ABSTRACT: Discussion of public and patient involvement (PPI) in health economics (HE) research is growing. There is much literature on PPI principles and standards, but little specifically regarding involving patients in HE research. Here, we outline "PACTS", a set of principles, developed with a PPI group, for considering patient involvement in HE research. Planning: Involvement is best built in to research plans from the outset. This includes setting specific goals for involvement activities, and clearly communicating the background and purpose of involvement. Approach selection: We describe two main approaches to involvement-discussion-based and task-based. Discussion-based approaches are useful for generating broad insights and revealing "unknown unknowns". Task-based approaches offer a more foc

SUBMITTER: Hawton A 

PROVIDER: S-EPMC7548133 | biostudies-literature | 2021 Jul

REPOSITORIES: biostudies-literature