Potential research ethics violations against an indigenous tribe in Ecuador: a mixed methods approach.

ABSTRACT:

Background

Biomedical and ethnographic studies among indigenous people are common practice in health and geographical research. Prior health research misconduct has been documented, particularly when obtaining genetic material. The objective of this study was to crossmatch previously published data with the perceptions of the Waorani peoples about the trading of their genetic material and other biological samples.

Methods

We conducted a mixed methods study design using a tailored 15-item questionnaire in 72 participants and in-depth interviews in 55 participants belonging to 20 Waorani communities about their experiences and perceptions of participating in biomedical research projects. Additionally, we conducted a systematic review of the literature in order to crossmatch th

SUBMITTER: Ortiz-Prado E 

PROVIDER: S-EPMC7568418 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature