Perspectives on life participation by young adults with chronic kidney disease: an interview study.

ABSTRACT:

Objective

To describe the perspectives on life participation by young adults with childhood-onset chronic kidney disease (CKD).

Design

Semi-structured interviews; thematic analysis.

Setting

Multiple centres across six countries (Australia, Canada, India, UK, USA and New Zealand).

Participants

Thirty young adults aged 18 to 35 years diagnosed with CKD during childhood.

Results

We identified six themes: struggling with daily restrictions (debilitating symptoms and side effects, giving up valued activities, impossible to attend school and work, trapped in a medicalised life, overprotected by adults and cautious to avoid health risks); lagging and falling behind (delayed independence, failing to keep up with peers and socially inept); defeated and hopeless (

SUBMITTER: Kerklaan J 

PROVIDER: S-EPMC7569939 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature