Palliative care for rare advanced lung diseases in underserved Appalachia: Study protocol for a randomized controlled trial.

ABSTRACT:

Aim

To pilot test a home end-of-life and palliative care intervention for family caregivers and patients with rare advanced lung diseases and to estimate effect-size for the power analysis in a future clinical trial.

Design

This study uses a parallel randomized control trial. Families are randomly assigned to the intervention group or the control group in a 1:1 fashion.

Methods

The study population includes patients with rare advanced lung diseases and their family caregivers who are involved in patients' home care. The control group receives standard care through their hospital or outpatient clinics. The intervention group receives standard care plus 2-weekly home end-of-life and palliative care coaching by experienced community nurses. Primary outcome is breathlessn

SUBMITTER: Piamjariyakul U 

PROVIDER: S-EPMC7572472 | biostudies-literature | 2020 Aug

REPOSITORIES: biostudies-literature