"I'm in a very good frame of mind": a qualitative exploration of the experience of standing frame use in people with progressive multiple sclerosis.

ABSTRACT:

Objectives

The study aim was to explore the experiences of people with progressive multiple sclerosis (MS) and their standing assistants during their participation in Standing Up in Multiple Sclerosis, a randomised controlled trial (RCT) of a home-based, self-managed standing frame programme.

Design

A qualitative approach, using audio diary methodology was used to collect data contemporaneously. Diary data were transcribed verbatim and analysed using thematic analysis.

Setting

Participants were recruited from eight healthcare organisations in two regions of the UK. The intervention was home-based.

Participants

As part of the RCT, 140 participants were randomly allocated to either usual care or usual care plus a standing frame programme. Using a sampling matrix

SUBMITTER: Dennett R 

PROVIDER: S-EPMC7594359 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature