[Development of a decision aid for participative advance planning for people with dementia and their relatives].

ABSTRACT:

Background

Patients with a diagnosis of dementia face various important social and health-related decisions. Due to the progression of the disease it seems crucial that patients try to deal with these decisions early in the course of the disease to have the opportunity to make decisions autonomously. Professional support can help to plan in advance according to the wishes and possibilities in an effective and individualized manner.

Material and methods

The instrument was developed in a multiphase process based on advance care planning and shared decision-making. The prototype was pretested on 8 patient-relative dyads from a special outpatient department for early recognition and adapted as best as possible to their needs. Subsequently, in a pilot study the applicability of t

SUBMITTER: Bronner K 

PROVIDER: S-EPMC7606278 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature