Barriers and Facilitators of Palliative Care and Advance Care Planning in Adults With Congenital Heart Disease.

ABSTRACT: Palliative care has potential to improve quality of life and goal-concordant care for patients with adult congenital heart disease (ACHD). However, it is rarely employed prior to critical illness because the best methods for implementation are not well-defined. We qualitatively evaluated ACHD patients' understanding of and opinions regarding palliative care and advance care planning (ACP) to better define the needs of this population. We conducted a thematic analysis of 25 semistructured interviews with patients with ACHD in which we assessed participants' perspectives on the need for, and barriers and facilitators to, the use of palliative care and ACP. In a group of participants with ACHD (mean age 38, 48% male) classified as simple (24%), moderate (32%), or complex (44%), we identified

SUBMITTER: Steiner JM 

PROVIDER: S-EPMC7606779 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature