Hearing Norton Sound: community involvement in the design of a mixed methods community randomized trial in 15 Alaska Native communities.

ABSTRACT: Community involvement is important in good research practice. We led a community-based study to improve early detection and treatment of childhood hearing loss in rural Alaska. This study evaluated a cell phone-based hearing screening process and compared a new telemedicine specialty referral pathway to the standard primary care referral pathway. The study included community involvement, engagement, and participation from the very beginning to inform how to best design the trial. We obtained insight and feedback from community members through involvement of a core stakeholder team and through community engagement and participation in focus groups and community events. Feedback received through community involvement and participation influenced the design of the trial at key decision points

SUBMITTER: Robler SK 

PROVIDER: S-EPMC7607825 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature