Understanding what matters to young people with life-limiting and life-threatening conditions: a qualitative study to inform the development of a young person end-of-life capability measure.

ABSTRACT: End-of-life care encompasses a range of services aimed at delivering holistic interventions. Yet, economic evaluations of such services have tended to be focused on health-related outcomes, which may be too narrow to adequately capture outcomes at the end of life. Capability measures aim to capture wider outcomes focusing on what people can do and be in their lives. Capability measures are not yet available for children and young people at the end of life. This study aimed to identify important capabilities for young people aged 14-25 years across the end-of-life trajectory, to inform attribute development for a capability measure for use in economic evaluation of interventions at the end of life. Twenty-one in-depth interviews were undertaken with young people aged 14-25 years with a life

SUBMITTER: Floredin I 

PROVIDER: S-EPMC7618747 | biostudies-literature | 2025 Oct

REPOSITORIES: biostudies-literature