Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?

ABSTRACT:

Background

A key ethical question in genomics research relates to whether individual genetic research results should be disclosed to research participants and if so, which results are to be disclosed, by whom and when. Whilst this issue has received only scarce attention in African bioethics discourse, the extension of genomics research to the African continent has brought it into sharp focus.

Methods

In this qualitative study, we examined the views of adolescents, parents and caregivers participating in a paediatric and adolescent HIV-TB genomic study in Botswana on how solidarity and reciprocity obligations could guide decisions about feedback of individual genetic research results. Data were collected using deliberative focus group discussions and in-depth interviews.

SUBMITTER: Ralefala D 

PROVIDER: S-EPMC7640670 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature