Participant understanding of informed consent in a multidisease community-based health screening and biobank platform in rural South Africa.

ABSTRACT:

Background

In low- and middle-income settings, obtaining informed consent for biobanking may be complicated by socio-economic vulnerability and context-specific power dynamics. We explored participants experiences and perceptions of the research objectives in a community-based multidisease screening and biospecimen collection platform in rural KwaZulu-Natal, South Africa.

Methods

We undertook semi-structured in-depth interviews to assess participant understanding of the informed consent, research objectives and motivation for participation.

Results

Thirty-nine people participated (individuals who participated in screening/biospecimen collection and those who did not and members of the research team). Some participants said they understood the information shared with t

SUBMITTER: Ngwenya N 

PROVIDER: S-EPMC7651191 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature