Implementation of a learning healthcare system for sickle cell disease.

ABSTRACT:

Objective

Using sickle cell disease (SCD) as a model, the objective of this study was to create a comprehensive learning healthcare system to support disease management and research. A multidisciplinary team developed a SCD clinical data dictionary to standardize bedside data entry and inform a scalable environment capable of converting complex electronic healthcare records (EHRs) into knowledge accessible in real time.

Materials and methods

Clinicians expert in SCD care developed a data dictionary to describe important SCD-associated health maintenance and adverse events. The SCD data dictionary was deployed in the EHR using EPIC SmartForms, an efficient bedside data entry tool. Additional data elements were extracted from the EHR database (Clarity) using Pentaho Data Integ

SUBMITTER: Miller R 

PROVIDER: S-EPMC7660956 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature