Multidisciplinary aortopathy clinics: A systematic scoping review of the literature and evaluation of patient experiences from a newly started clinic in Norway.

ABSTRACT:

Background

International guidelines recommend hereditary thoracic aortic diseases (HTADs) to be managed in multidisciplinary aorta clinics.

Aim

To study HTAD patient's experiences with a aortopathy clinic in Norway and to review the literature on aortopathy clinics.

Methods

(a) A systematic scoping review of research on multidisciplinary clinics for HTADs. (b) A cross-sectional postal questionnaire study to investigate patient experiences with the health-services. Fifty consecutive patients from the aortopathy clinic and 50 controls in usual care were invited to participate.

Results

The review identified eight publications on aortopathy clinics. Although the papers were not judged for quality, these showed promising results from such clinics in terms of diagnos

SUBMITTER: Bathen T 

PROVIDER: S-EPMC7693247 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature