Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting.

ABSTRACT:

Background

The knowledge about the experience of informal caregivers who provide care to people with moderate to advanced dementia in a domestic home setting is limited. A consequence of long hours of caregiving in addition to dealing with normal challenges of daily living is their experience of a poor quality of life. Some of their experiences may be described in terms of a feeling of powerlessness to make changes during care provision. This feeling may also suggest an experience of moral distress. The aim of this systematic review is to synthesise qualitative evidence relating to these experiences.

Methods

This review adopts a narrative synthesis approach. A search will be conducted for studies written in the English language in the bibliographic databases MEDLINE Complete

SUBMITTER: James C 

PROVIDER: S-EPMC7694266 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature