Patient experiences with hypertrophic cardiomyopathy: a conceptual model of symptoms and impacts on quality of life.

ABSTRACT:

Background

Hypertrophic cardiomyopathy (HCM) is a primary myocardial disorder defined by left ventricular hypertrophy that cannot be explained by another cardiac or systemic disease. There is a general lack of knowledge about patients' perspectives on the symptoms and day-to-day limitations they experience as a result of HCM. We therefore sought an in-depth understanding of patients' experiences of obstructive (oHCM) and nonobstructive (nHCM) forms of the disease, including symptoms and their quality of life impacts, and to develop a conceptual model to capture them.

Methods

Development of the HCM conceptual model involved a web-based survey to capture patients' insights, a targeted literature review (which included relevant guidelines and patient advocacy websites), one-to-

SUBMITTER: Zaiser E 

PROVIDER: S-EPMC7708573 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature