The Hearts in Rhythm Organization: A Canadian National Cardiogenetics Network.

ABSTRACT:

Background

The Hearts in Rhythm Organization (HiRO) is a team of Canadian inherited heart rhythm and cardiomyopathy experts, genetic counsellors, nurses, researchers, patients, and families dedicated to the detection of inherited arrhythmias and cardiomyopathies, provision of best therapies, and protection from the tragedy of sudden cardiac arrest.

Methods

Recently, existing disease-specific registries were merged into the expanded National HiRO Registry, creating a single common data set for patients and families with inherited conditions that put them at risk for sudden death in Canada. Eligible patients are invited to participate in the registry and optional biobank from 20 specialized cardiogenetics clinics across Canada.

Results

Currently, there are 4700 particip

SUBMITTER: Davies B 

PROVIDER: S-EPMC7710951 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature