How congenital Zika virus impacted my child's functioning and disability: a Brazilian qualitative study guided by the ICF.

ABSTRACT:

Introduction

The Zika virus outbreak in Brazil has had devasting social, medical and financial consequences for families. Both researchers and clinicians are measuring longer-term outcomes to understand the impact of the Zika on child development, functioning and disability. Outcomes and tools used to measure them are very varied and we are unclear how meaningful they are to families and children. This study aimed to identify the parents' perspectives on relevant areas of functioning and disability that should be included as outcome measures for children with congenital Zika syndrome (CZS), as guided by the International Classification of Functioning, Disability and Health (ICF).

Methods

This qualitative study included parents or caregivers of children aged 0-5 years with co

SUBMITTER: Campos TNC 

PROVIDER: S-EPMC7713226 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature