Facebook Support Groups for Rare Pediatric Diseases: Quantitative Analysis.

ABSTRACT:

Background

Loneliness, social isolation, and feeling disconnected from society are commonly experienced by parents of children with rare diseases and are, among others, important reasons for special supportive care needs. Social networking platforms are increasingly used for health communication, information exchange, and support. In the field of rare pediatric diseases, qualitative studies have shown that Facebook online support groups are utilized by and beneficial for persons affected by rare pediatric diseases. Nonetheless, the extent of this usage has not been investigated.

Objective

This study aims to provide a comprehensive quantitative analysis of the extent of Facebook usage as a tool for rare pediatric disease support groups and to explore factors that influence a

SUBMITTER: Titgemeyer SC 

PROVIDER: S-EPMC7714646 | biostudies-literature | 2020 Nov

REPOSITORIES: biostudies-literature