Patient engagement in a Canadian consensus forum for heart donation after circulatory determination of death.

ABSTRACT:

Purpose

Heart donation and transplantation following circulatory determination of death has yet to be performed in Canada. A consensus forum was held to provide expert guidance to inform policy with a comprehensive patient partner strategy. This paper describes the process used to create fulsome patient partner engagement resulting in mutually beneficial policy development in this complex area.

Methods

A wide-ranging process for involving patient partners in this area included pre-meeting education, in-meeting expert support, full participation and permission to step back if desired, and post-meeting debriefing. Following the meeting, a questionnaire was used to guide a debrief discussion with patient partners and steering committee members who co-authored this paper.

Res

SUBMITTER: Healey A 

PROVIDER: S-EPMC7716912 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature