The emotional and social burden of heart failure: integrating physicians', patients', and caregivers' perspectives through narrative medicine.

ABSTRACT:

Background

The The Roadmap Using Story Telling project used a narrative medicine (NM) framework to assess the perspectives of people with heart failure (HF), their informal caregivers and HF specialists of the impact of HF on the daily life of patients and their carers.

Methods

Italian HF specialists participated on a voluntary basis, completing their own narratives, and inviting patients and their caregivers to write anonymously about their experiences, all on a dedicated online platform. The narratives were analyzed according to standard NM methodology.

Results

82 narratives were collected from patients, 61 from caregivers, and 104 from HF specialists. Analysis of the three points of view revealed the extent of the burden of illness on the entire family, particularl

SUBMITTER: Testa M 

PROVIDER: S-EPMC7733244 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature