What patients want to know, and what we actually tell them: The ABIDE project.

ABSTRACT:

Background

We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations.

Methods

Audio recordings of clinician-patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content-coded by two coders. The coding scheme encompassed 25 informational topics.

Results

Approximately half (Mdn = 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (Mdn = 14) compared to others (Mdn = 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely in

SUBMITTER: Fruijtier AD 

PROVIDER: S-EPMC7744024 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature