Privacy protections to encourage use of health-relevant digital data in a learning health system.

ABSTRACT: The National Academy of Medicine has long advocated for a "learning healthcare system" that produces constantly updated reference data during the care process. Moving toward a rapid learning system to solve intractable problems in health demands a balance between protecting patients and making data available to improve health and health care. Public concerns in the U.S. about privacy and the potential for unethical or harmful uses of this data, if not proactively addressed, could upset this balance. New federal laws prioritize sharing health data, including with patient digital tools. U.S. health privacy laws do not cover data collected by many consumer digital technologies and have not been updated to address concerns about the entry of large technology companies into health care. Further

SUBMITTER: McGraw D 

PROVIDER: S-EPMC7782585 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature