Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study.

ABSTRACT:

Objectives

To describe the experiences, priorities, and needs of patients with rheumatic disease and their parents during transition from paediatric to adult healthcare.

Setting

Face-to-face and telephone semistructured interviews were conducted from December 2018 to September 2019 recruited from five hospital centres in Australia.

Participants

Fourteen young people and 16 parents were interviewed. Young people were included if they were English speaking, aged 14-25 years, diagnosed with an inflammatory rheumatic disease (eg, juvenile idiopathic arthritis, juvenile dermatomyositis, systemic lupus erythematosus, panniculitis, familial Mediterranean fever) before 18 years of age. Young people were not included if they were diagnosed in the adult setting.

Results

SUBMITTER: Jiang I 

PROVIDER: S-EPMC7783517 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature