Satisfaction with ankle foot orthoses in individuals with Charcot-Marie-Tooth disease.

ABSTRACT:

Background

Ankle foot orthoses (AFOs) are commonly prescribed to individuals with Charcot-Marie-Tooth disease (CMT). The aim of this study was to evaluate patient reported satisfaction with orthotic devices and services in individuals with CMT to provide preliminary data for advancing AFO development and improving clinical care.

Methods

The Orthotics and Prosthetics Users Survey was distributed via e-mail through the Inherited Neuropathy Consortium (INC) Contact Registry and includes 11 device-specific questions and 10 service-related questions. Participants were also asked open-ended questions about their experiences with AFOs.

Results

Three hundred and fourteen individuals completed the survey. Over one-third of participants provided negative responses, including di

SUBMITTER: Zuccarino R 

PROVIDER: S-EPMC7784614 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature