Cancer Patient Perspectives on Sharing of Medical Records and Mobile Device Data for Research Purposes.

ABSTRACT: Sharing data is critical to advancing science, improving health, and creating advances in the delivery of health care services. The value of sharing data for cancer research purposes is well established, and there are multiple initiatives under way that address this need. However, there has been less focus on cancer patient perspectives regarding the sharing of their health information for research purposes. This study examined cancer patient perspectives on the sharing of de-identified health data for research purposes including both data from medical records and mobile applications. This cross-sectional study used survey methodology to collect data from cancer patients/survivors (N = 677). Overall, we found that participants were largely willing (71%) to share de-identified medical data

SUBMITTER: Franklin EF 

PROVIDER: S-EPMC7786788 | biostudies-literature | 2020 Dec

REPOSITORIES: biostudies-literature