Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines.

ABSTRACT: This article presents evidence-based Clinical Practice Guidelines (CPG) for the provision of healthcare services to address sexuality for people living with epidermolysis bullosa (EB). Currently, a lack of EB-specific research limits these services to sexual health assessment and intervention strategies designed for the general population. Due to the unique challenges of EB, a rare skin-fragility condition causing blistering responses to minor skin trauma and other systemic and secondary complications, condition-specific strategies are needed to support people with EB in achieving valued sexual lifestyles. This CPG represents the work of an international panel comprised of thirteen members including a medical doctor, nurses, psychologists, a social worker, an occupational therapist, and pa

SUBMITTER: King A 

PROVIDER: S-EPMC7789698 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature