Lost in Transition: Health Care Experiences of Adults Born Very Preterm-A Qualitative Approach.

ABSTRACT: Introduction: Adults Born Very Preterm (ABP) are an underperceived but steadily increasing patient population. It has been shown that they face multiple physical, mental and emotional health problems as they age. Very little is known about their specific health care needs beyond childhood and adolescence. This article focuses on their personal perspectives: it explores how they feel embedded in established health care structures and points to health care-related barriers they face. Methods: We conducted 20 individual in-depth interviews with adults born preterm aged 20-54 years with a gestational age (GA) below 33 weeks at birth and birth weights ranging from 870-1,950 g. Qualitative content analysis of the narrative interview data was conducted to identify themes related to

SUBMITTER: Perez A 

PROVIDER: S-EPMC7793891 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature