Development of a Conceptual Model of Chronic Lymphocytic Leukemia to Better Understand the Patient Experience.

ABSTRACT:

Background and objective

Understanding the patient experience is important for identifying the unmet need in chronic lymphocytic leukemia. The current study aimed to develop a comprehensive chronic lymphocytic leukemia conceptual model.

Methods

The conceptual model was based on literature searches, review of chronic lymphocytic leukemia patient blogs/forums, and interviews with five expert clinicians, with 20 patients who received at most one treatment (first line) for their chronic lymphocytic leukemia, and with 20 patients with relapsed or refractory chronic lymphocytic leukemia. De-identified interviews were transcribed, coded, and evaluated using qualitative data analysis software.

Results

Thirty-five prevalent chronic lymphocytic leukemia-related symptom and impa

SUBMITTER: Eek D 

PROVIDER: S-EPMC7794108 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature