Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation.

ABSTRACT:

Background

Public involvement is increasingly considered a prerequisite for high-quality research. However, involvement in palliative care is impeded by limited evidence on the best approaches for populations affected by life-limiting illness.

Aim

To evaluate a strategy for public involvement in palliative care and rehabilitation research, to identify successful approaches and areas for improvement.

Design

Co-produced qualitative evaluation using focus groups and interviews. Thematic analysis undertaken by research team comprising public contributors and researchers.

Setting/participants

Researchers and public members from a palliative care and rehabilitation research institute, UK.

Results

Seven public members and 19 researchers participated. Building a

SUBMITTER: Johnson H 

PROVIDER: S-EPMC7797607 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature