Responsiveness to Change Over Time: An Examination of the Neuro-QoL Social Function Measures in Persons with Huntington's Disease.

ABSTRACT:

Background

Social health is an important concern in persons with Huntington's disease (HD); however, there is little literature examining this construct in this population.

Objective

While cross-sectional data supports the clinical utility of two Neuro-QoL social health measures in persons with HD, data is still needed to establish their longitudinal validity.

Methods

Participants (N = 358) completed baseline and at least one follow-up (12- and 24-month) assessment that included the completion of Neuro-QoL Social Health computer adaptive tests (CATs) and short forms (for Ability to Participate in Social Roles and Activities [SRA] and Satisfaction with SRA). Test-retest reliability was examined using intra class correlations, and one-way ANOVAs with Bonferroni post-hoc

SUBMITTER: Carlozzi NE 

PROVIDER: S-EPMC7799504 | biostudies-literature | 2020

REPOSITORIES: biostudies-literature