Understanding participation in European cohort studies of preterm children: the views of parents, healthcare professionals and researchers.

ABSTRACT:

Background

Retention of participants in cohort studies is a major challenge. A better understanding of all elements involved in participation and attrition phenomena in particular settings is needed to develop effective retention strategies. The study aimed to achieve an in-depth understanding of participant retention in longitudinal cohorts focusing on participants' and researcher's perspectives, across three diverse socio-geographic and cultural settings.

Methods

This study used a triangulation of multi-situated methods to collect data on cohort studies of children born with less than 32 weeks of gestation in Denmark, Italy and Portugal. It included focus groups and individual semi-driven interviewing with involved key actors (i.e. parents, staff, healthcare professionals,

SUBMITTER: Marques SCS 

PROVIDER: S-EPMC7802270 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature