United States Pulmonary Hypertension Scientific Registry: Baseline Characteristics.

ABSTRACT:

Background

The treatment, genotyping, and phenotyping of patients with World Health Organization Group 1 pulmonary arterial hypertension (PAH) have evolved dramatically in the last decade.

Research question

The United States Pulmonary Hypertension Scientific Registry was established as the first US PAH patient registry to investigate genetic information, reproductive histories, and environmental exposure data in a contemporary patient population.

Study design and methods

Investigators at 15 US centers enrolled consecutively screened adults diagnosed with Group 1 PAH who had enrolled in the National Biological Sample and Data Repository for PAH (PAH Biobank) within 5 years of a cardiac catheterization demonstrating qualifying hemodynamic criteria. Exposure and reproduc

SUBMITTER: Badlam JB 

PROVIDER: S-EPMC7803940 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature