Psychosocial Burden of Childhood Sickle Cell Disease on Caregivers in Kenya.

ABSTRACT:

Objectives

To characterize the types and magnitude of psychosocial burden present in caregivers who have a child with sickle cell disease (SCD) in Kenya and to identify predictors of caregiver psychosocial burden, including disease severity and financial hardship.

Methods

Primary caregivers (N = 103) of children aged 1-10 years diagnosed with SCD completed surveys assessing multiple domains of caregiver quality of life (QOL), adjustment to child illness, mental health, and financial hardship. Descriptive statistics characterize psychosocial burden, and linear models assess associations.

Results

On indicators of QOL, caregivers report multiple difficulties across most domains, including daily activities and physical, social, cognitive, and emotional well-being. Daily a

SUBMITTER: Kuerten BG 

PROVIDER: S-EPMC7825476 | biostudies-literature | 2020 Jun

REPOSITORIES: biostudies-literature