Quality of online self-management resources for adults living with primary brain cancer, and their carers: a systematic environmental scan.

ABSTRACT:

Background

A primary brain cancer diagnosis is a distressing, life changing event. It adversely affects the quality of life for the person living with brain cancer and their families ('carers'). Timely access to evidence-based information is critical to enabling people living with brain cancer, and their carers, to self-manage the devastating impacts of this disease.

Method

A systematic environmental scan of web-based resources. A depersonalised search for online English-language resources published from 2009 to December 2019 and designed for adults (> 25 years of age), living with primary brain cancer, was undertaken using the Google search engine. The online information was classified according to: 1) the step on the cancer care continuum; 2) self-management domains (PRISM

SUBMITTER: Schaefer I 

PROVIDER: S-EPMC7827995 | biostudies-literature | 2021 Jan

REPOSITORIES: biostudies-literature