Community Perspectives on Communicating About Precision Medicine in an Alaska Native Tribal Health Care System.

ABSTRACT:

Background

Precision medicine seeks to better tailor medical care to the needs of individual patients, but there are challenges involved in communicating to patients, health care providers, and health system leaders about this novel and complex approach to research and clinical care. These challenges may be exacerbated for Alaska Native and American Indian (ANAI) people, whose experiences of unethical research practices have left some ANAI communities hesitant to engage in research that involves extensive data-sharing and diminished control over the terms of data management and who may have distinct, culturally-informed communication needs and preferences. There is need for communication research to support Tribal health organizations and ANAI people as they consider implementation

SUBMITTER: Woodbury RB 

PROVIDER: S-EPMC7839995 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature